Bladder Management
Management of the neurogenic (referring to an abnormally functioning bladder due to compromised nerve supply) bladder secondary to myelomeningocele should be started when a child normally obtains bladder control; however, a baseline urological evaluation should be attained within the first month of life and at regular six month to yearly intervals thereafter.
A regular bladder routine initially preformed by the patient parents (at about 3 years of age) consists of intermittent clean catheterization performed 3-4 times per day based on the patient's residual urine volume (that amount of urine left in the bladder after the patient voids without the assistance of a catheter) and the bladder's capacity to hold urine. As soon as the patient is cognitively and physically able to perform self-catheterization, instruction should be started with the goal; of independent catheterization. Yearly urological follow-up examinations is imperative in patients with spina bifida to monitor bladder pressure (an indicator of whether the bladder is being stretched by over filling due to excessive intervals between catheterization) as well as bladder capacity, sphincter function (how well the muscle controlling the outlet of the bladder is functioning), and monitoring for bladder or renal stones. Pharmacological agents are prescribed as indicated for high pressure bladder and bladder or sphincter spasticity. Urinary incontinence in a patient on a regular bladder routine is most often due to a urinary tract infection but may also be due to bladder/sphincter dysynergia.
Control of bowel function in a patient with myelomeningocele is individualized and must be done on a consistent basis. As in starting a bladder routine, a regular bowel routine should be started at about the age of normal bowel continence (~ age three). Prior to the age of beginning a routine, parents should be instructed to modify the child's diet, assure adequate fluid intake and use a laxative as required to prevent constipation over and over distention of the bowels. Bowel management in the child over 3 years of age should be attempted on a daily or every other day schedule. It is best to take advantage of the rectocolic reflex which occurs after eating in the morning or evening as the time of rectal evacuation. An initial combination of a stool softener, irritant cathartic (e.g., ducolax) or peristaltic agent (e.g., Senecot) and suppositories may be tried to establish a regular routine. Modification of the diet as well as the addition of metamucil may be indicated. The end goal is to attain a regular routine without the use of a laxative. Typically, digital stimulation of the rectal outlet is the mechanism used to stimulate evacuation once the routine is established. It must be kept in mind that there cannot be a rigidly prescribed bowel routine which is applicable to all patients - each patient must be tried on a series of medications until a successful bowel routine can be attained.
Other Sites of Interest
Children with Spina Bifida
A page of links for parents of children with spina bifida
Information about Spina Bifida and Hydrocephalus
From Queensland Association for People with Spina Bifida or Hydrocephalus
Association for Spina Bifida and Hydrocephalus
Index Page with links to many topics
Spina Bifida Association of America
This homepage links to useful information and lists links to other sites.



